Angels in the Rockies

January 14, 2024 will be a very special day at Sulphur Mountain Lookout.
by Ed Whalen | December 29, 2023, 2:44 PM ET

 

A family vacation to some can be stressful, but GM Constable is lucky to have an extended family that loves getting together, even looks forward to vacations together. It was one of those trips of relaxing and hiking in the mountains around Lake Louise 5 summers ago that something seemed a little off with the joy from one of the families. With the family gathered in their room, we would discover that their beautiful little boy had been diagnosed with a disease called Angelman Syndrome. There were plenty of questions as none of us had ever come across it before and for good reason, it only affects about 1 in 20000 people.

We learned that Angelman syndrome is a genetic disorder. It causes delayed development, problems with speech and balance, intellectual disability, and, sometimes, seizures which may begin between the ages of 2 and 3 years old. They are often non-verbal and may learn to walk. We learned that there is no cure, yet. We also learned that Angelman syndrome is a genetic disorder. It's usually caused by problems with a gene located on chromosome 15 called the ubiquitin protein ligase E3A (UBE3A) gene.

We also learned that people with Angelman’s smile and laugh a lot. They seem very happy and excited a lot of the time. For this reason and fitting with the name of the disease, patients are often referred to as “Angels”. If you’d had the extreme pleasure of meeting my nephew Peter, you’d know why. The term “light up a room” is not a cliché for Peter, or as we refer to him, “Sweet Pete”. Peter is attending a public school and regular classroom with assistance. He immediately won over the entire school with children constantly waving to him at recess or while being dropped off or picked up. His classmates constantly want to partner up with him. To put it bluntly, he’s a celebrity. In fact, there was a professional video made with him as the star to educate the public about Angelman’s.

While attending the Angelman’s Walk this year, GM Constable thought about what more he could do for Peter and all the amazing people and families he sees each year. With “that other league” moving away from celebrations of nights like Pride Night and other worthy causes, the thought around the SICHL was the other league made the wrong decision.

The Banff Rockies Franchise have the distinct pleasure to announce that the first Rockies, Supersonics game of the year at Sulphur Mountain Lookout scheduled for January 14, 2024 will be Angelman’s Night or “Angels in the Rockies”. The luxury boxes will be filled with angels and we are hoping to raise more money to find a cure. The Rockies will be wearing their newly designed Angelman’s jersey with all profits from sales of this beautifully designed new jersey going to Angelman’s research and Sweet Pete will be dropping the ceremonial puck at center ice. There truly will be angels in the Rockies that evening.

If you’d like to learn more about Angelman’s or to donate to the Angelman Syndrome Foundation of Canada, please follow the link:

www.angelmancanada.org

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